Agenda-driven reformers untroubled by human consequences

(First published in the Manawatu Standard and Nelson Mail, April 20.)

The American economist Milton Friedman once said that it’s a great mistake to judge things by their intentions rather than by their results.

Unfortunately it’s a mistake repeatedly made by agenda-driven reformers on a mission to create the perfect society. A Radio New Zealand Spectrum programme brought one such instance to public attention earlier this month.

Until 2007, intellectually disabled people in New Zealand were exempted from minimum wage laws. This meant they could be employed doing menial work in facilities known as sheltered workshops.

It was a system whereby thousands of New Zealanders who were incapable of holding down proper jobs were nonetheless able to occupy themselves each day doing simple, repetitive work.

They were paid only a token sum, but the money wasn’t important. What really mattered was the companionship they enjoyed in the workplace and the satisfaction they got from having a job to go to each day.

It was an arrangement long supported by the IHC (originally the Intellectually Handicapped Children’s Society) and by parents with working-age disabled children. The IHC was itself the country’s biggest operator of sheltered workshops.

Then ideology intervened. Disability became politicised.

Sheltered workshops may have admirably met the needs of those working in them, but reformers looked at them and saw only exploitation and discrimination. 

Where others saw contented workplaces, left-wing activists saw a vulnerable minority being deprived of their rights. Sue Bradford, then a Green MP, called it “systemic oppression”. 

Pumped up with reformist zeal, the Labour government in 2007 repealed the Disabled Persons Employment Promotion Act, which since 1960 had allowed disabled workers to be employed for less than the minimum wage.

A system was adopted whereby everyone working in sheltered workshops was individually assessed to see whether they were capable of mainstream employment at normal pay rates. Those who were judged incapable were given a continuing exemption from the minimum wage law.

The IHC applauded. It too had been ideologically captured. Over opposition from many of its bewildered members, the IHC seized the opportunity to shut down 76 workshops and “business units”.

In Blenheim, locals were so appalled by IHC’s plan to sell a nursery and plant centre which employed intellectually disabled workers that a community trust was set up to buy the business and keep it going.

Part of the problem was that the IHC itself had changed radically. Originally an organisation run largely by parents and volunteers, it had evolved into a government-funded Wellington bureaucracy led by disability-sector careerists.

The reforms had predictable consequences. True, a minority of the more “able” disabled found paying work. But the closure of those sheltered workshops deprived hundreds of intellectually disabled people of the satisfaction of going to work each and enjoying the camaraderie of others.

Despite extravagant promises, no satisfactory form of alternative activity was found for most of those tipped out of work.

Where previously they had delivered firewood, done ironing, mowed lawns, made letterboxes, worked in garden centres and sorted goods for recycling, they now watched TV, sat idly in “day bases” or went for walks. This was euphemistically called community participation.

In many cases, denied constructive work, their behaviour deteriorated. Some became difficult to manage.

Parents and caregivers were left bitter and disenchanted. Many felt betrayed by the IHC, the very organisation they looked to for support.

Of course none of this directly affected the well-paid ideologues, politicians and bureaucrats in Wellington, who were safely insulated from the consequences of their policies.

Now it seems the reformers aren’t satisfied with the damage already done in the name of bogus “inclusiveness”. As Spectrum reported, the exemption permits issued to more than 800 disabled workers nationwide are now under threat of cancellation.

This is presumably Phase II of the project commenced in 2007 – the final solution, if you like.

Let’s give the reformers the benefit of the doubt and assume they want to create an ideal world in which no one is disadvantaged.

The problem is, they’re willing to make people suffer for it to happen. 

Spectrum focussed on Southland Disability Enterprises in Invercargill, one of a small number of independent sheltered workshop operators that continued to function after IHC abandoned the field.

The 80 disabled people working at SDE were all issued with exemption permits, but now the government wants to cancel those permits. If that happens, SDE will cease to be viable and the people who happily work there will be out of jobs. This is madness.

The Wellington bureaucrat driving the change explained that exempting disabled people from the minimum wage law was “out of step with modern thinking”.

She went on to pronounce that people with disabilities mustn’t be treated differently from others. Problem is, they are different. Or perhaps she hasn’t noticed.

And what’s being offered in return? Nothing at all, if you unpicked the bureaucrat’s vague and non-committal reference to possible subsidies, employment supports and training schemes.

I was reminded of the far-fetched promises made in 2007, when the reformers cruelly misled intellectually disabled people with phantasmic visions of the fulfilling new life that awaited them.

I wonder what National’s Invercargill MP Sarah Dowie (no, I hadn’t heard of her either) is doing to save the jobs of the SDE workers. This is her government, after all. Or do politicians find it too hard to resist agenda-driven public servants? If that’s the case, we’re in deep trouble.

I started this column with a quotation, so I’ll finish with another one – this time from the great Christian writer C S Lewis, who memorably said: “Of all tyrannies, a tyranny sincerely exercised for the good of its victims may be the most oppressive.”

News flash! Academics side with teachers

The least surprising news item in today’s Dominion Post was the one revealing that more than 100 academics have written to the government opposing primary school league tables. I hesitate to question the judgment of the Dom Post’s news editor, but the fact that academics are lobbying to preserve the right of their friends in the teaching profession to withhold information from parents about the quality of schools is not news. There is a common thread to every position taken by the teachers’ unions and their supporters in academia, whether it’s opposition to national standards, paranoia about league tables or the recent petulant call for schools’ decile ratings to be kept secret. It’s all about withholding information from parents and taxpayers – the people who use and pay for the education system – so that the unions can continue to exercise control; and it’s presented under the guise of concern for the wellbeing of pupils when it’s really about protecting teachers and schools from critical scrutiny.

There was a similar “so what’s new?” quality to an opinion piece in today’s paper attacking the charter schools experiment. It was co-written by Trish Grant of the IHC – a once-respected organisation that has been captured ideologically and consequently lost much of its credibility – and Ian Leckie of the primary school teachers’ union, the NZEI. The vehemence with which opponents are pursuing their offensive against charter schools is telling. It’s only a trial, and on a very modest scale at that, yet the charter schools experiment is clearly seen as a threat to the status quo. We can expect a constant barrage of alarmist propaganda against the charter schools initiative as reactionary sector groups seek to protect their positions, again under the guise of concern for children.

Politicising the disabled

In a column in The Dominion Post in February 2008, I wrote that a law change requiring intellectually disabled workers to be paid the legal minimum wage was a triumph of human rights ideology over common sense. My column attracted a response from Ruth Dyson, then the Minister for Disability Issues, who told me in an email that in fact it was a triumph of fairness and common sense over ideology.

I remained unconvinced, and two years later decided to take a closer look at what had happened following the Labour-led government’s repeal of the Disabled Persons Employment Promotion (DPEP) Act in November 2007, which in turn led to the closure of 76 IHC sheltered workshops. What I learned, from speaking to parents of intellectually disabled persons and people working in the disability sector, confirmed my initial impressions. If anything, things were worse than I imagined.

In an article published in the latest issue of The Listener, I report that intellectually handicapped people who previously gained a sense of fulfilment and camaraderie from going to work each day in IHC sheltered workshops now spend much of their time in empty, purposeless non-activities euphemistically labelled “community participation”. This often consists of walks, going shopping or going to the pool – none of which is any substitute, parents say, for the work they used to do.

I spoke to parents of disabled adults all over New Zealand who felt betrayed and angry over the changes imposed in 2007. I use the word “betrayed” because the law change was enthusiastically supported by IHC – the very organisation those parents looked to for support. And although the government and IHC insisted there was widespread consultation beforehand, the parents I interviewed, many of them long-standing members of IHC, refute that. One said parents were shellshocked by the announcement that IHC’s sheltered workshops were to close. Another had heard only rumours before the changes were announced and said she suspected that the people consulted were a vocal group of the “higher-achieving” disabled who didn’t speak for those with intellectual disabilities.

One mother told me that her fit and active adult daughter, who had previously worked in an IHC team doing outdoor jobs that provided a constructive outlet for her energy, had suffered behavioural problems since IHC terminated her job and was now subject to a court order. A man who ran an intellectually disabled crew that did lawnmowing, firewood and garden work says his former crew members, deprived of the stimulation of daily work and thrown back into the company of people who were more seriously impaired, have regressed since IHC pulled the plug on their employment. There are hundreds of similar stories.

So what’s going on here? How come IHC, an organisation supposedly committed to the wellbeing of the intellectually disabled, was party to a law change that seems to have greatly disadvantaged many of the very people it purports to help? The answer, as I write in my Listener article, is that IHC has been captured by a rights-based ideology that politicised the treatment of the disabled. In the process, it has distanced itself (in fact alienated itself might be more accurate) from many parents with intellectually handicapped children – the very people who have traditionally been its most loyal and supportive members. The depth of feeling against the IHC that I encountered, both from parents and IHC caregivers (though the latter wouldn’t dare be identified for fear of repercussions), was striking. The impression I got was of an organisation out of touch with its grassroots. In fact a secondary thread in my article touches on the dangers that arise when former voluntary charities such as IHC morph into large, politicised bureaucracies that depend on the government for funding (as IHC does, receiving more than $200 million a year from the state).

As one parent pointed out to me, a conflict of interest occurs when the organisation charged with lobbying the government on behalf of the intellectually disabled is also beholden to the government for money. The pressure to fall into line with government policy – in fact, to effectively become a de facto arm of government – is obviously formidable.

Before I go any further, some background. The DPEP Act, passed in 1960, exempted sheltered workshops run by IHC and other providers of services for the disabled from having to pay the legal minimum wage. The act was founded on the assumption that the disabled were not productive enough to justify being paid a proper wage. Most parents supported the arrangement because it provided the intellectually disabled with productive daily activity in a safe, supportive environment. And though the sheltered workshop employees were generally paid only a token amount for their work, parents and caregivers insist that money is of little meaning to many intellectually disabled people. As Southland Disability Enterprises manager Ian Beker put it to me, self-esteem and comradeship are far more important.

In the face of a rising clamour for disabled people’s rights, however, none of that seemed to matter. Labour came to power in 1999 bent on freeing the disabled from the shackles of discrimination. Cheered on by disabled activists, it created an Office of Disability Issues and appointed Dyson as the first Minister.

As with many ideologically driven changes, the new approach involved a redefining of language. According to the Disability Strategy issued by the Labour government in 2001, “Disability is not something individuals have. What individuals have are impairments.” Disability, the strategy said, was what happened when other people created barriers that prevented the impaired from enjoying a full life. A similar ideology held sway at the Human Rights Commission, which proclaimed: “Disability is seen as a result of how society treats its citizens.”

Under this new philosophy, sheltered workshops were seen as exploiting a vulnerable minority. Green MP Sue Bradford went further, describing them in Parliament as a form of “systemic oppression” underpinned by a “paternalistic” charity model.

The Disability Strategy was followed by another document called Pathways to Inclusion, which outlined how the new philosophy would affect vocational services for the intellectually handicapped. In it, Dyson said people with disabilities had told the government they wanted to determine their own futures and be treated as valued members of society.

The IHC bureaucracy in Wellington embraced the new rights-based approach and lobbied in favour of the act’s repeal, as did trade unions and the Disabled Persons Assembly, an articulate lobby group which purports to represent all people with disabilities. IHC’s director of advocacy, Trish Grant, wrote: “Times have changed. We now understand that people with intellectual disabilities have the same needs and aspirations as anyone else.” The attitudes reflected in the DPEP Act, she wrote, were discriminatory and contravened the Human Rights Act.

Grant claimed that IHC had talked to thousands of intellectually disabled people and their families, “and they have told us consistently that they want opportunities for real work and they want real pay for the work they do.” Strangely, none of the parents I spoke to recalled being consulted. Some of them suspect the consultation was mainly with the Disabled Persons Assembly, which they say is dominated by well-educated, articulate people with physical and sensory rather than intellectual disabilities.

Under the new legislation, the automatic exemption from the minimum wage laws was wiped. In the interests of creating a “fully inclusive society”, disabled workers were to be granted the same rights as everyone else, including the right to earn the minimum wage, join unions and take annual holidays.

Everyone working in sheltered workshops was to be individually assessed. Those deemed capable of working in mainstream employment would be helped to find real jobs on the open market while those not capable of earning a minimum wage would be able to apply for an under-rate worker’s permit – effectively an exemption from the minimum wage law – and be paid according to their productivity.

One result of the change was that a new layer of bureaucracy was imposed on the disability sector in the form of Labour Department inspectors who must now individually assess each disabled worker every year. Providers of disability services say the increased administrative burden has added greatly to their costs.

But a much more significant consequence was that IHC, which operated 70 percent of the country’s sheltered workshops, decided they were no longer compatible with its vision of a “fully inclusive” society and closed them all down. Chief executive Ralph Jones said IHC’s primary role was to support people with intellectual disabilities, not run business enterprises for them. Instead, IHC would concentrate on supporting its service users into “mainstream” employment.

It wasn’t a question of IHC’s sheltered workshops no longer being economically viable, because other providers of similar services, having obtained the necessary exemptions from the minimum wage, continue to operate.

The insensitivity with which aspects of the change were handled by IHC is extraordinary. In one town, intellectually handicapped people apprehensive about what the new regime might mean were assured that it would help them get jobs that paid much better money. This went down very well, I was told, until they asked what sort of jobs they would be getting. The list included “restaurant worker”, “library worker” and “pool attendant” – occupations that a caregiver described as “spectacularly inappropriate”.

In Blenheim, parents were astonished when their intellectually handicapped children, who worked in an IHC-owned garden centre, were given a jargon-laden memo advising them that they would become “self advocates” running “micro enterprises” and would have to set up bank accounts and negotiate payments with clients. Some of those given the memo could neither read nor write. (The garden centre, incidentally, was subsequently bought by a hastily formed trust after IHC, to the indignation of the local community which had supported the business for 25 years, announced it was going to be closed and sold.)

IHC’s critics concede that many higher-achieving intellectually disabled people have benefited from the change. They have found mainstream jobs and are earning better money. But the repeal of the DPEP Act has not been so kind to the many former employees of IHC sheltered workshops who are incapable of “real” work and are now, since the closures, effectively idle. They have borne the cost of the IHC’s determination to pursue a rights-based philosophy.

Even for some who found “real” jobs, the outcomes have not always been ideal. Maori Party MP Hone Harawira told Parliament in 2007, when the transition to the new regime was already well advanced, that some intellectually disabled employees were teased and bullied in their workplaces. In Invercargill, parent Marion Miller estimated that 50 percent placed in jobs soon resigned because they couldn’t handle the pressure.

The idealistic theory behind the changes was that intellectually disabled workers would be scattered around the community. But as one mother said to me, intellectually disabled people greatly value the camaraderie that comes from being among their peers with caregivers who understand their needs. Only the most capable are comfortable working in a “normal” environment.

Moreover, as an experienced caregiver explained to me, many intellectually disabled people need emotional, physical or behavioural support and some take a daily cocktail of powerful medications. “If a dose is skipped, changed, lost, muddled or forgotten, the roll-on effects can be dangerous.” It was safer and much less hassle, the caregiver said, for an employer to hire a student or retiree for the same money.

Much of this, however, seems to have been overlooked by IHC in its headlong rush into a brave new world where everyone enjoys the same rights.

There are parallels here with the mental health reforms of the 1990s, when thousands of people suffering psychiatric illness were unceremoniously bundled out of institutions – often disregarding the concerns of their families – on the pretext that it was their right to live independently in the community. The result was that mental patients who had previously had the benefit of a secure environment in which they were fed, clothed, medicated and given a warm bed were let loose, effectively to fend for themselves. It was no coincidence that in the years following de-institutionalisation, the country was appalled by a spate of horrendous crimes perpetrated by severely mentally ill people who had previously been under proper supervision.

In the case of the changes affecting the intellectually disabled, the sad irony is that the people I wrote about in The Listener are now much less engaged in their communities than they were previously. This is the opposite of the effect intended.

Intellectually disabled people who mowed lawns and gathered firewood, for example, were out and about in their communities every day. An intellectually disabled woman who worked in an IHC business unit that provided ironing services in Taupo would help do the banking and got to know people along the route. When her parents walked down the street with her they were amazed at how many people greeted her by name. Now, in the brave new post DPEP regime, many of these people are ghetto-ised in day care facilities.

The irony doesn’t escape George Tyree, who ran an IHC outdoor work team in Levin. He refers to the government policy so eagerly embraced by IHC as “pathways to exclusion”. It’s impossible to escape the conclusion that for many intellectually disabled people, the “rights” conferred by the 2007 law change have come at the expense of their quality of life.